About this site
A family that read the number, asking that everyone else's be read too.
LymphocyteCount.org is not a company, a clinic or a charity. It is a website built by a Sarasota family after a blood value nobody mentioned turned out to matter, kept honest by linking every claim to its source.
Who
Who runs it
Dr. Gary Kompothecras and Beth Kompothecras, of Sarasota, Florida, with help from their family. Beth was treated for stage 3 colon cancer in 2023. In January 2026, with clear scans, her absolute lymphocyte count was 525 and had never been discussed. In 2026 she received ten injections of Anktiva under an FDA-authorized expanded-access protocol at the Chan Soon-Shiong Institute for Medicine, and her count returned to the normal range. Her statement and the Killing Cancer presentation tell that story in their own words.
Dr. Gary is a chiropractic physician and business owner, not an oncologist. Nothing here is a substitute for the judgment of the people treating you. What the family brings is time, the means to read the literature, and a reason to insist that a number printed on every blood test be read.
Funding & independence
Who pays for it
Self-funded
The site, the film, the animation and the printed materials are paid for by the Kompothecras family. There are no sponsors.
No industry money
We have received no funding, review, editorial input or approval from any pharmaceutical company, including ImmunityBio, the maker of Anktiva, or from the Chan Soon-Shiong Institute for Medicine. Beth is a patient there, and the family is grateful for her care; that is the entire relationship.
No ads, no data sales
There is no advertising on this site, no affiliate links, and no sale or sharing of visitor information. We use privacy-respecting, cookie-free analytics to count page views.
A conflict we disclose anyway. Beth's count came back after a specific drug, and the family believes it helped her. That is a reason to read the sources on the Anktiva page yourself, which is why we list the FDA's warning letter to the manufacturer alongside the approval, and why company-reported figures are labeled and kept separate from peer-reviewed work throughout the site.
Methodology
How we check the facts
The rule is simple: a number does not appear on this site unless a reader can click through to where it came from. When we cannot find a source, we say so, and we describe what we searched.
- Primary sources first. Peer-reviewed papers (linked to PubMed or PubMed Central), FDA and EMA documents, ClinicalTrials.gov entries, and guideline pages from NCCN, ASCO and IDSA. We link the paper, not a news story about the paper.
- Company statements are labeled. Press releases and conference abstracts from any manufacturer are marked "company" and listed after independent sources. They are included for completeness and should be weighed accordingly.
- Figures are quoted as published. Hazard ratios, confidence intervals, sample sizes and dates are copied from the source. Where a figure is commonly misquoted (for example, 802 patients often cited as 3,000), we note the correct one.
- Absence claims are limited. We distinguish treatment-specific monitoring and infection-prevention requirements from the unresolved question of lymphocyte-restoring treatment across solid tumors. We welcome corrections and additional guidance.
- Honest labeling of Anktiva. The drug is FDA-approved for one indication (BCG-unresponsive non-muscle-invasive bladder cancer with carcinoma in situ, April 22, 2024). Its use for lymphopenia is investigational. Every page that mentions it says so.
- Review dates are shown. Each content page carries a "last reviewed" date. When a page changes materially we update the date and log the change below.
- Beth's numbers are from her reports. Her counts (525 in January 2026; 1,400 in February 2026 after the first injection; 1,131 in July 2026 after ten) are read from her laboratory reports, which the family holds. One patient is a story, not evidence of efficacy, and we say so wherever her numbers appear.
What this site is not
- Not medical advice. Do not change any treatment because of something you read here.
- Not a recommendation of any drug. It is an argument that a number be read and recorded.
- Not a clinical trial or a registry. We do not collect health data unless you choose to send us your story.
- Not affiliated with HHS, the FDA, or any government agency, hospital or company.
Change log
- September 6, 2026 — Added FAQ, About, Press kit, Write to HHS & FDA, and Share your story pages; sources panel on the Anktiva page; review stamps on content pages.
- September 2026 — Editor's Cut of Killing Cancer and the "How Anktiva Works" animation added; site published at lymphocytecount.org.
- Summer 2026 — Evidence, patient and clinician pages, the ALC wallet card and the Killing Cancer presentation written and reviewed.
Patient stories
How we handle your story
If you send us your story, here is exactly what happens to it.
- It goes to one inbox, info@lymphocytecount.org, read by the family. It is not posted automatically.
- Nothing is published without your written consent, and you choose the form: full name, first name only, or anonymous. You can change or withdraw consent at any time by emailing us, and we will remove the story from the site.
- We may ask to see the lab report the number came from before publishing a count, so that what appears here is as verifiable as everything else.
- We never share your contact details, diagnosis or reports with anyone, including drug companies, clinics or journalists, unless you ask us to make an introduction.
- Stories are used for one purpose: to show HHS, the FDA and clinicians how often the count goes unread, and what changes when it is.
Privacy
What we collect from visitors
- Nothing by default. Reading this site sets no cookies and requires no account.
- Analytics. We use Cloudflare Web Analytics, which counts page views without cookies, fingerprinting or tracking individuals across sites.
- Forms. What you type in the contact, story and update forms is sent to our inbox (and, for the update list, added to a private spreadsheet) only when you press send. The forms are delivered by Web3Forms; if that service is unreachable the form opens your own mail app instead, and nothing passes through us at all.
- Video. The films are hosted on our own storage, not YouTube, so watching them does not send data to a video platform. Where we embed a third-party clip we say so and it loads only when you click play.
- Updates list. One email a month at most; every message includes a way to be removed, or write to info@lymphocytecount.org.
Reach us
Corrections, missed studies, requests to meet the patients, and press inquiries all go to the same inbox.