Share your story

Was your number low, and did anyone tell you?

Beth's count was 525 for two years and never came up. We think that is common, and we would like to prove it to the people who write the guidelines. If your count was low during or after treatment, or if it came back, tell us what happened. It goes to one private inbox and nothing is published without your written consent.

Story form

Sent to info@lymphocytecount.org and read by the family. If the form cannot reach our server, it opens a pre-filled email in your own mail app instead. Please do not attach lab reports here; we will ask for them by email if needed. How we handle stories.

Thank you. Your story has reached us. We read every one, and we will only ever publish it in the form you chose.

Why it helps

One story is an anecdote. A hundred is a pattern.

When we sit down with policy staff, the studies do the arguing. What the studies cannot show is how often a patient is sent home "cancer-free" with a count that would stop a clinical trial. Your account, dated and with a number, fills that gap.

What makes a story useful

  • The count itself, with the date, if you have it. Old lab reports are usually in your patient portal under "CBC with differential."
  • Whether it was ever mentioned, and by whom.
  • What treatment you had, roughly when.
  • What happened next, including if your count recovered on its own or with help.

Your privacy. We never share your contact details, diagnosis or reports with anyone, including drug companies, clinics or reporters, unless you ask us to make an introduction. Stories are stored in a private inbox, not a database, and you can ask us to delete yours at any time.

Not sure what your number is? Start here, or use the ALC checker to convert the units on your report.