Share & contact
The fastest way to change this is one patient asking one question.
Send this site to someone in treatment, to their oncologist, or to the person who writes the guideline. Each button below shares a ready-made message; edit it however you like.
Share the site
Short link: LymphocyteCount.org
Share a specific page
For someone in treatment
How to find the number on their CBC, what it means, and seven questions for their oncologist.
For a clinician or policymaker
The prognostic evidence, the guideline gap, the regulatory record, and three requests to HHS.
Killing Cancer, the presentation
Six patients, in their own voices. Twelve minutes.
Copy and paste
A note to your oncologist
Paste into your patient portal before your next visit.
Dr. ______, Before my next visit I would like to talk about my absolute lymphocyte count (ALC) on my recent CBC. I have read that treatment-related lymphopenia is associated with worse outcomes (Grossman et al., JNCCN 2015; Damen et al., IJROBP 2021) and that counts can stay low for a year or more after treatment. Could we look at my current count together, record my pre-treatment baseline if we have one, and decide how often to recheck it? If it is low, I would also like to know whether any trials or expanded-access programs apply to me. Thank you, ______
Copy and paste
A note to your representative
Members of Congress and HHS officials read constituent mail. Keep it short.
Dear ______, I am writing about a gap in cancer care that costs nothing to close. Every cancer patient's routine blood test already reports an absolute lymphocyte count, a value that decades of peer-reviewed research shows predicts survival. Neutrophils have national guidelines and approved drugs; lymphocytes have neither. I am asking you to urge HHS to (1) have NCI convene NCCN and ASCO to add lymphocyte monitoring to supportive-care guidance, (2) have FDA use the expedited pathways it has already granted for lymphopenia therapy, and (3) have CMS open coverage with evidence development so patients are not left to find treatment through connections. The evidence and the patients' stories are at LymphocyteCount.org. Sincerely, ______
Contact
Write to us
Request a meeting with the patients, ask for the full research dossier, send a correction, or tell us about a guideline we missed. Journalists and congressional staff are welcome.
Or email hello@lymphocytecount.org directly.
Stay informed
Occasional updates on lymphocyte monitoring, the policy asks, and the patients' progress. No more than one email a month. Tick the box in the form to be added.